My thoughts on this are, is it because many of us choose to stay silent for fear and the agony and mental and emotional trauma it causes us to speak out and be told 'it's in your head'? Let me put it out there in plain English, masses of black and brown people are dying and being fobbed off by GP's and medics who ignore that sickle cell anaemia pain is agonising and debilitating.
This proves even worse for us with the trait of this disease, because we are deemed as I've said before 'healthy carriers' and medically insignificant! That leaves people like me with very little hope!
However, I am at peace and content, that my book can provide those with the trait like myself with a black and white evidence log of someone's journey with the trait, no other health conditions except for the 'trait' and with years of photo logs and journaling my pains and experiences have proved to be a great record of just what sickle cell trait can cause, because of that ignorance!
If it can aid in someone else recieveing the care that they so deserve and NEED, then so be it! If it can even go a milestone further and begin to change things for us with sickled haemoglobinopathies, because there are more of us with some type of sickled haemoglobin whether full blown or carriers like me, then that's a reason to celebrate! I won't stop advocating now, until that day we unite as one comes!
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